
Most of Our Group - Ready to Ride Like Mad!
We went to Disneyland for Thanksgiving this year with my family and today I wanted to give you a glimpse of what life is like traveling with a quadriplegic. With me pregnant and Jason’s wheelchair a factor, we didn’t think we would do much more than watch the riders, enjoy the atmosphere, eat from various vendors and hang out with our family. We did eat – sampling everything from the frozen bananas and Adventureland’s pineapple sherbet to the corn dogs and Turkey Legs (which were a little much for this pregnant girl!). We also definitely enjoyed the atmosphere and did some people watching in the process.
But we should have known that my brothers and brother-in-law would dive right in and make sure Jason rode every ride his heart desired. After going on the Jungle Cruise (which is totally wheelchair accessible, by the way) with the whole family, the men decided that we needed to take things up a notch and commenced to pitch in wherever and whenever to haul Jason in and out of the fastest, wettest rides in the parks.

The Guys on Space Mountain - Jason, wet from Splash Mountain, is hanging onto Kory for balance and giving the thumbs up approval
Jason is a quadriplegic. This can mean a lot of things to each individual depending on where their break in their neck is and their movement. Officially it means that he doesn’t have use of all four of his extremities. This is true to a certain extent. He has no use of his legs and no use of his hands but he does have partial use of his arms. He basically doesn’t have the right muscles to move a manual wheelchair, using a power wheelchair instead and he has to be lifted in and out of his chair each day. He has no use of his hands, meaning he can’t grip things but fakes it quite well by being able to partially move his arms. This allows him to drive his handicap-accessible van from his wheelchair using hand controls.
When Jason first broke his neck, his therapists taught him the necessity of good posture even though he lacks trunk muscle support. His wheelchair has special side pads that help him stay upright but most of his ability to sit straight in his chair is because he taught himself to do so 20 years ago. His good posture makes more difference than you might realize as he is able to breath more efficiently and even looks better sitting up straight in his chair versus slouching. His therapists were brilliant all those years ago.
So, to make Disneyland happen we had to take all of these things into consideration. When we travel we rent handicap-accessible vans if possible. I am the driver because they lack his special hand controls or lock-down device but they all have automatic ramps and space for Jason in the passenger side of the car. Someone also has to take care of getting him in and out of bed and dressed each day. Being pregnant, me as the lifter was not an option but instead of bringing our aide with us we decided to take our family up on their offer to do the lifting.
I use body mechanics to lift Jason – he is 6′3″ and about 180 lbs. but doing what is called a “pivot lift,” I can get him in and out of his chair quite easily. In this case, I guided the lift but my brothers took turns doing the real work to get Jason in and out of his chair each day. I handled the rest of his care – that part is not as strenuous. I am grateful we have people who help Jason each day with his care but I loved the freedom that not having an aide with us gave to our vacation.

Uncle Jason and Our Nephew Jason on the Train
These same principles applied to each ride that Jason went on at Disneyland and California Adventure – except complicated greatly by the fact that the guys were moving him in and out of tight spaces, down into cars, over armrests, between railings and up steps. Each ride required a new plan, a new strategy as to what was the best way to get him in and out in the fastest possible time.
By the time our trip was over, they had learned that “legs first” was the way to go and that the Indiana Jones ride wasn’t worth the effort. My job was to move his wheelchair out of the way while the men dealt with maneuvering and strapping him in. Then the chair and I would wait the 30 seconds (Tower of Terror) to 3 minutes (Space Mountain) that it took to finish the ride before I would move the chair back in “ready” position for them to lift him back into.

Jason & I with Our Buddy Buzz Lightyear
Surprisingly, I actually enjoyed role. My brothers are awesome and I loved seeing Jason’s face at the end of each ride – knowing that he hadn’t ridden rides like that in over 20 years.
And we found out very quickly that the hauling and lifting was well worth the effort – Jason was the instant Fast Pass to all the rides. So, that just made it even more fun for everyone to stick with him! Our nieces and nephews loved heading past all the long lines, knowing that if they were with Uncle Jason, they could ride everything twice as many times.
Jason’s favorite ride? California Screamin’ roller coaster, of course! Who doesn’t love those Mickey Mouse ear loops? That one got multiple rides from everyone – including the quadriplegic who is really a kid at heart.

Jason was excited to for our baby's first trip to Disneyland!
What’s not to love about “the happiest place on earth?”

Mild-Mannered Cousins or Intergalactic Space Rangers?

Belle, Me & My Niece Brynne

Our Niece Kenlee, My Mom & Nephew Ryan

Our Nieces Having a Churro Feast


How wonderful that your family gave Jason the help needed to really enjoy the day at Disney. I bet you can’t wait to scrap it all. Looking forward to A Life Well Crafted. Only 2 weeks from tomorrow. I have my pre-class work done and I”m really excited.
That is so awesome your family got to enjoy Disney together. We just went to Disney last Friday–it is a great place that is so accomodating to anyone who visits there. Thanks for sharing your experience!
I am thrilled to hear Jason was able to ride the rides. I have an Uncle who doesn’t have the use of his legs do to Cerebral Palsy. The first time we went to Disney in 1983 he was able to ride everything. Throughout the years, their policies have changed. For quite awhile he wasn’t able to ride because they said he couldn’t get himself off should something go wrong. Each visit policy seemed to change.
I’m thinking that a trip to Disney may be in order, knowing that he’d be able to ride to his hearts desire! He’s a big kid at heart too.
What an experience! I am so glad Jason got to go thru it the same as everyone else.
Merry Christmas!
Kolette thank you for that glimpse into what it’s like for you and for Jason! It looks like you had a wonderful time and sounds like Jason really got to do everything he wanted and that’s what Disney is all about, living your dreams whether you are a child or an adult.
How wonderful! Great pictures of a family having a great time together. Thanks for sharing.
Jason is such an inspiration! And what a wonderful family to make sure that Jason was in the thick of all the fun and water!!
Hugs,
Jenny in Maine
Kolette, I’m glad Jason had such a wonderful time. It’s nice to know you can count on family when you really need them. While the situation with Jason can be difficult at times, you always see the positive and find a way to handle things. You inspire me to always be grateful even when things may not be going the way I want them to. Thanks.
That is AWESOME that you guys were able to enjoy the park like that! Nice job coordinating all of the help. I’m familiar with the pivot transfer, and while I’ve mastered that, I can’t imagine all of the getting onto and off of rides. I’m so glad they let you guys do it, though.
We’ll have to put Disney on our list of places to go, for sure!
Kollette…
Love that! We just went to DisneyWorld and had a simliar experience. My oldest son has Autistic Spectrum Disorder and our physician wrote a letter for him, we turned that into Guest Services and voila…the ultimate fast pass. It was so great. It really saved our trip. Plus he was done every day by 3:00pm so for the true Disney girl I am that helped to and see everything we wanted. What a great family you have to chip in like that….but of course I already knew that! I bet your hubby had the best trip ever, as did you seeing how happy he was.
You are so right about the instant fast pass! We took a passle of grandkids (7 out of 17) to Disney World in August, and I was having some major gall bladder problems. My doctor would only let me go if I agreed to use a scooter. I am really glad I did because there is no way I could have handled walking. I couldn’t do the rides due to my gallbladder issues and severe weinieness (chicken little is my friend), but I did enjoy going to the Halloween party as 101 Dalmations with our party of 14. The kids all wished I would do Space Mountain……but they were really glad when we got on the rides I could do without waiting in line. And then two weeks ago my husband and I took my legally blind dad and his wife who required a wheel chair to the Christmas party at Magic Kingdom. My dh pushed Joan, and I led dad, and they both had a blast. Disney is one place that makes sure EVERYONE can have a good time.
Linda
Kollete
What a great post! My bro. Is in a wheelchair I hope that one day we as a family can go to disneyland and have as much fun as you and Jason!
What a great family you have!